I'm just a mom, blogger, and advocate.
Hello my lovelies. I know I haven’t been on here writing in a while. Life has been happening. So what prompted this post? Well honestly so many things, but mainly my emotions. I’ve been battling a rollercoaster of anxiety for the last few months. Battling whether to walk away from a situation or to stay. … More I am enough….so are you.
On July 8th I had an open parastomal hernia repair, and colostomy revision. It required two surgeons for the surgery; my colorectal surgeon, (whom is amazing) and the hernia repair specialist. Both have extensive experience with EDS patients. We went over everything. The plan, the options, and knew it wouldn’t be an easy surgery, or … More Surgery….
This story was also published on The Mighty. Thursday I was craving some fries from McDonalds, which is one of my safe foods due to my gastroparesis. So I placed a mobile order, I did curbside pick up, but it wasn’t letting me check in for pickup. So I went inside. The cashier was talking … More Hearing Loss, Masks & Ableism
This was also published by The Mighty. Dear Doctors: We come to you for help. We come to you already scared, frustrated, anxious. We don’t need any additional added to us. What we don’t need is for you to medically gaslight us. That’s not acceptable. Not in any way. We KNOW that as a rare … More An Open Letter to Doctors
This story was also posted in The Mighty. Two years ago I hated my body. A year ago, I still struggled. I struggled with my self esteem, my self worth. I worked so hard to find what I love about myself, to find me. To love me. I struggled immensely after two urgent surgeries in … More Body Positivity.. I’m a work in progress
Dating isn’t easy. At any age, definitely not as we grow older. Relationships take work, trust, communication. You go through ups and downs. Breakups, marriage, divorce. There’s so many different things that go into a relationship, that make it work. Each one is unique, each partner is unique. Together, they’re a couple. Being chronically ill … More Relationships…and chronic illness
We made is through 2020!! I feel like that is such an accomplishment! We’ve faced things we’ve never before experienced. We made it through. We made it to 2021. My 2020 was riddled with appointments, treatment decisions, ensuring my nutrition was stable, and virtual school for my son. Which was an absolute disaster. So much … More Wrapping up 2020
Dysautonomia awareness month! What does this mean to me? It means i try to raise awareness for dysautonomia. Educate, and share my journey. In 2013, I was diagnosed with dysautonomia. Now, there’s 15 different forms. I have THREE! Three different forms. 8 years ago it was so bad I couldn’t stand up without fainting. It … More October is…dysautonomia
Covid has changed life as we know it. Honestly it’s made things so much more complicated. It’s affected mental health, which is devastating. More importantly, this has affected our kids. Our kids are suffering so much. It’s heartbreaking. Virtual learning was a complete bust for us. It was a nightmare. Trying to keep him on … More Covid, TPN and Autism…
“I’m fine.” ” I don’t want to bother you.” “Do you still love me?” ” I don’t mean to bother you.” “I’m spiraling”…. These phrases.. There are what i call my alert flags. These phrases can typically alert those closest to me that i’m not ok. Emotionally, mentally. These are my warnings i’m spiraling into … More Tired…end the stigma