This story was also posted in The Mighty. Two years ago I hated my body. A year ago, I still struggled. I almost lost an amazing partner because of my insecurities. I struggled with my self esteem, my self worth. I worked so hard to find what I love about myself, to find me. To … More Body Positivity.. I’m a work in progress
Dysautonomia awareness month! What does this mean to me? It means i try to raise awareness for dysautonomia. Educate, and share my journey. In 2013, I was diagnosed with dysautonomia. Now, there’s 15 different forms. I have THREE! Three different forms. 8 years ago it was so bad I couldn’t stand up without fainting. It … More October is…dysautonomia
Covid has changed life as we know it. Honestly it’s made things so much more complicated. It’s affected mental health, which is devastating. More importantly, this has affected our kids. Our kids are suffering so much. It’s heartbreaking. Virtual learning was a complete bust for us. It was a nightmare. Trying to keep him on … More Covid, TPN and Autism…
Body Positivity, Self Worth, Depression, Insecurities, Counseling.. Why are these words, these phrases so taboo in the chronic illness community. Why are these barely talked about? Is it supposed to help us by not acknowledging these happen? That these can affect us? It doesn’t. It actually hurts us. Positivity in general seems to be ridiculed … More Freedom in Body Acceptance
I survived Thanksgiving! This year was my first year with my tubes!! It was hard, but we kept it small this year, just my mom, my son and I. My mom made a crustless pumpkin pie for me, which was great. Keeping it small really meant alot. I was invited to spend it with my … More Anemia, And Hearing Loss you say?
It’s been an absolutely, ridiculously difficult post op.. The worst ever. Sometimes things just go awry! How can we plan for them? The best we can. I had a laparotomy September 19th. I had no real choice. My GJ was failing, I was starving. The plan was simple. Go in, clean scar tissue … More Post-Op from Hell..But I’m ok
Insecurities are a real bitch. They suck. They suck the love, joy and happiness from you. They can destroy you, your relationship and your happiness. “Just be confident”.. People say.. Don’t you think i’ve tried that?? Do you think I like being this insecure, scared person?? 5 years ago I was so confident. I … More Insecurities are a real…..
It’s summer time!!! Time for heat, beaches and pool! Summer is probably the worst time of the year for me due to the heat. It’s been quite the summer! So much as happened! Who else has a hard time during the summer? Anyone have any special plans this summer? My son has been battling a … More I’m a unicorn…
I’m sorry I’ve been absent for the last few months. A lot happened and I’ve been trying to process and deal. My gastroparesis has become a complete nightmare. On top of that I had to move unexpectedly. All this caused some major emotional distress and resulted in a depression/anxiety flare from hell. Lots of … More You are not a burden…
I am home from Vanderbilt. It was a long appointment, and a very difficult one for me. The travelling was one of horrible experiences to date. Leaving Ft. Lauderdale airport, I was refused a wheelchair because I refused to check my carry on bag. By the time I made it to the gate I … More Vanderbilt- At Last