On July 8th I had an open parastomal hernia repair, and colostomy revision. It required two surgeons for the surgery; my colorectal surgeon, (whom is amazing) and the hernia repair specialist. Both have extensive experience with EDS patients. We went over everything. The plan, the options, and knew it wouldn’t be an easy surgery, or … More Surgery….
This story was also published on The Mighty. Thursday I was craving some fries from McDonalds, which is one of my safe foods due to my gastroparesis. So I placed a mobile order, I did curbside pick up, but it wasn’t letting me check in for pickup. So I went inside. The cashier was talking … More Hearing Loss, Masks & Ableism
Dating isn’t easy. At any age, definitely not as we grow older. Relationships take work, trust, communication. You go through ups and downs. Breakups, marriage, divorce. There’s so many different things that go into a relationship, that make it work. Each one is unique, each partner is unique. Together, they’re a couple. Being chronically ill … More Relationships…and chronic illness
We made is through 2020!! I feel like that is such an accomplishment! We’ve faced things we’ve never before experienced. We made it through. We made it to 2021. My 2020 was riddled with appointments, treatment decisions, ensuring my nutrition was stable, and virtual school for my son. Which was an absolute disaster. So much … More Wrapping up 2020
Dysautonomia awareness month! What does this mean to me? It means i try to raise awareness for dysautonomia. Educate, and share my journey. In 2013, I was diagnosed with dysautonomia. Now, there’s 15 different forms. I have THREE! Three different forms. 8 years ago it was so bad I couldn’t stand up without fainting. It … More October is…dysautonomia
I’ve been dealing with health issues. My gastroparesis has flared to a hellish point. It’s become extremely problematic, to the point i’m hardly able to eat, and i’m living in constant severe nausea. I’ve lost weight, most haven’t noticed because i’m wearing baggy clothes to hide how much I’ve lost. However, things have come … More My new reality…
Here’s my new post! Please give it a read, and leave a comment. … More From Dad’s Perspective…
Hello my beautiful and amazing lovelies!!! I know i’ve been missing in action, but now i’m focusing more on writing, with the support of my family and friends!!! OK!! Lets get down to it! So, i’m not sure any of you know, last year I signed on to be a Community Leader with Dysautonomia Support … More Life, Insecurities and Strength
Hi all!!! I know it’s been a long time, unfortunately my actual website crashed, and I can’t retrieve anything from it! 🙁 So, i’m starting over on here, while I rebuild a new one! So stay tuned my lovelies! So, it’s been an eventful year! Onto a quick medical update: It’s been a year of … More Annnnd.. We’re back!
Hello my dear readers and friends! I know it’s been quite some time since I’ve written, and I’m sorry. I was not well, and had to take time to at least wrap my head around things surrounding my health. On August 19, 2014 I sent my sweet baby boy to Kindergarten!!! He’s such a big … More I’m back… again!