On July 8th I had an open parastomal hernia repair, and colostomy revision. It required two surgeons for the surgery; my colorectal surgeon, (whom is amazing) and the hernia repair specialist. Both have extensive experience with EDS patients. We went over everything. The plan, the options, and knew it wouldn’t be an easy surgery, or … More Surgery….
March is Endometriosis Awareness Month.. So let’s talk about it. What Exactly is it? Endometriosis is an often painful disorder in which tissue similar to the tissue that normally lines the inside of your uterus — the endometrium — grows outside your uterus. Endometriosis most commonly involves your ovaries, fallopian tubes and the tissue lining … More Let’s Talk Endometriosis..
It’s been an absolutely, ridiculously difficult post op.. The worst ever. Sometimes things just go awry! How can we plan for them? The best we can. I had a laparotomy September 19th. I had no real choice. My GJ was failing, I was starving. The plan was simple. Go in, clean scar tissue … More Post-Op from Hell..But I’m ok
I’m sorry I’ve been absent for the last few months. A lot happened and I’ve been trying to process and deal. My gastroparesis has become a complete nightmare. On top of that I had to move unexpectedly. All this caused some major emotional distress and resulted in a depression/anxiety flare from hell. Lots of … More You are not a burden…
We hear so much of how being chronically ill affects us, but how does it affect our partners? What is it like from their perspective?? I quickly sent a text to my boyfriend, I explained I wanted to write a piece, essentially from his perspective. This is his view. … More From a Spouse’s Perspective
I’ve spent the last week or so reflecting on my year. My 2018 started out promising..it seemed to have spiraled a bit! January was interesting. It was probably when I first started having doubt about getting married. By March, I was thinking of my ex boyfriend, dreaming of him more often, and really started … More End of the Year… Reflection
I’ve been dealing with health issues. My gastroparesis has flared to a hellish point. It’s become extremely problematic, to the point i’m hardly able to eat, and i’m living in constant severe nausea. I’ve lost weight, most haven’t noticed because i’m wearing baggy clothes to hide how much I’ve lost. However, things have come … More My new reality…
**Trigger warning. ** The past month and a half has been incredibly difficult. I was supposed to get married, but things were called off. They should have been months ago… Ending a 2 year relationship and engagement wasn’t easy. However, the warning signs were there. The red flags were waving. I ignored them till … More Now I choose to live…
This post is going to be raw, unfiltered, and real. This is me being laid bare. Devastation, anger, betrayal, relief… those are the emotions i’ve felt in the last week and a half. Watching my future plans just fall apart. I’ve been so strong for so long.. When will someone be strong for me? When … More Down the Rabbit Hole..
This is going to be raw, deep, and i’ve held it in for so long, I need to tell it. Two years ago I went “ghost” as my best friend calls it. She had just been through hell, she needed me, and I just fell of the radar. I wasn’t the friend that I … More Going Ghost..Don’t do it.