This was also published by The Mighty. Dear Doctors: We come to you for help. We come to you already scared, frustrated, anxious. We don’t need any additional added to us. What we don’t need is for you to medically gaslight us. That’s not acceptable. Not in any way. We KNOW that as a rare … More An Open Letter to Doctors
March is Endometriosis Awareness Month.. So let’s talk about it. What Exactly is it? Endometriosis is an often painful disorder in which tissue similar to the tissue that normally lines the inside of your uterus — the endometrium — grows outside your uterus. Endometriosis most commonly involves your ovaries, fallopian tubes and the tissue lining … More Let’s Talk Endometriosis..
I survived Thanksgiving! This year was my first year with my tubes!! It was hard, but we kept it small this year, just my mom, my son and I. My mom made a crustless pumpkin pie for me, which was great. Keeping it small really meant alot. I was invited to spend it with my … More Anemia, And Hearing Loss you say?
We hear so much of how being chronically ill affects us, but how does it affect our partners? What is it like from their perspective?? I quickly sent a text to my boyfriend, I explained I wanted to write a piece, essentially from his perspective. This is his view. … More From a Spouse’s Perspective
I’ve spent the last week or so reflecting on my year. My 2018 started out promising..it seemed to have spiraled a bit! January was interesting. It was probably when I first started having doubt about getting married. By March, I was thinking of my ex boyfriend, dreaming of him more often, and really started … More End of the Year… Reflection
I’ve been dealing with health issues. My gastroparesis has flared to a hellish point. It’s become extremely problematic, to the point i’m hardly able to eat, and i’m living in constant severe nausea. I’ve lost weight, most haven’t noticed because i’m wearing baggy clothes to hide how much I’ve lost. However, things have come … More My new reality…
**Trigger warning. ** The past month and a half has been incredibly difficult. I was supposed to get married, but things were called off. They should have been months ago… Ending a 2 year relationship and engagement wasn’t easy. However, the warning signs were there. The red flags were waving. I ignored them till … More Now I choose to live…
This post is going to be raw, unfiltered, and real. This is me being laid bare. Devastation, anger, betrayal, relief… those are the emotions i’ve felt in the last week and a half. Watching my future plans just fall apart. I’ve been so strong for so long.. When will someone be strong for me? When … More Down the Rabbit Hole..
This is going to be raw, deep, and i’ve held it in for so long, I need to tell it. Two years ago I went “ghost” as my best friend calls it. She had just been through hell, she needed me, and I just fell of the radar. I wasn’t the friend that I … More Going Ghost..Don’t do it.
As I scroll through the many dysautonomia groups i’m in, I notice a recurring thing.. Quotes, concerns and just venting about relationships, self esteem, sex. So many of us go though relationship break ups, marriages, fertility issues, hard decisions regarding dating, or just to have children. We all look to each other for support … More Self Esteem Struggles