On July 8th I had an open parastomal hernia repair, and colostomy revision. It required two surgeons for the surgery; my colorectal surgeon, (whom is amazing) and the hernia repair specialist. Both have extensive experience with EDS patients. We went over everything. The plan, the options, and knew it wouldn’t be an easy surgery, or … More Surgery….
This story was also published on The Mighty. Thursday I was craving some fries from McDonalds, which is one of my safe foods due to my gastroparesis. So I placed a mobile order, I did curbside pick up, but it wasn’t letting me check in for pickup. So I went inside. The cashier was talking … More Hearing Loss, Masks & Ableism
This story was also posted in The Mighty. Two years ago I hated my body. A year ago, I still struggled. I struggled with my self esteem, my self worth. I worked so hard to find what I love about myself, to find me. To love me. I struggled immensely after two urgent surgeries in … More Body Positivity.. I’m a work in progress
We made is through 2020!! I feel like that is such an accomplishment! We’ve faced things we’ve never before experienced. We made it through. We made it to 2021. My 2020 was riddled with appointments, treatment decisions, ensuring my nutrition was stable, and virtual school for my son. Which was an absolute disaster. So much … More Wrapping up 2020
Body Positivity, Self Worth, Depression, Insecurities, Counseling.. Why are these words, these phrases so taboo in the chronic illness community. Why are these barely talked about? Is it supposed to help us by not acknowledging these happen? That these can affect us? It doesn’t. It actually hurts us. Positivity in general seems to be ridiculed … More Freedom in Body Acceptance
March is Endometriosis Awareness Month.. So let’s talk about it. What Exactly is it? Endometriosis is an often painful disorder in which tissue similar to the tissue that normally lines the inside of your uterus — the endometrium — grows outside your uterus. Endometriosis most commonly involves your ovaries, fallopian tubes and the tissue lining … More Let’s Talk Endometriosis..
I survived Thanksgiving! This year was my first year with my tubes!! It was hard, but we kept it small this year, just my mom, my son and I. My mom made a crustless pumpkin pie for me, which was great. Keeping it small really meant alot. I was invited to spend it with my … More Anemia, And Hearing Loss you say?
It’s been an absolutely, ridiculously difficult post op.. The worst ever. Sometimes things just go awry! How can we plan for them? The best we can. I had a laparotomy September 19th. I had no real choice. My GJ was failing, I was starving. The plan was simple. Go in, clean scar tissue … More Post-Op from Hell..But I’m ok
Insecurities are a real bitch. They suck. They suck the love, joy and happiness from you. They can destroy you, your relationship and your happiness. “Just be confident”.. People say.. Don’t you think i’ve tried that?? Do you think I like being this insecure, scared person?? 5 years ago I was so confident. I … More Insecurities are a real…..
It’s summer time!!! Time for heat, beaches and pool! Summer is probably the worst time of the year for me due to the heat. It’s been quite the summer! So much as happened! Who else has a hard time during the summer? Anyone have any special plans this summer? My son has been battling a … More I’m a unicorn…