Hello my dear readers!!! I’m sorry for the time in between posts!! I started having a difficult time, and just became withdrawn for a while. Never fear though, I’m back!!! February was a difficult month. I was sick with bronchitis for what felt like forever! My son became sick, My energy levels were non existent. … More Feb to March….CRAZY!!!
I am home from Vanderbilt. It was a long appointment, and a very difficult one for me. The travelling was one of horrible experiences to date. Leaving Ft. Lauderdale airport, I was refused a wheelchair because I refused to check my carry on bag. By the time I made it to the gate I … More Vanderbilt- At Last
I have had a few good days then a lot of bad days recently. Yesterday I spent pretty much in bed or on the couch. I just had no energy, and the pain was hell. I saw the Rheumatologist on Wednesday, she is now checking for Sjogren’s Syndrome. Joyous..Another possibility to add to the list. … More Down Days
Today I woke up and was in tremendous pain in my hands and legs.. I had problems speaking. Which is a new problem. It’s as if there is a disconnect between my brain and mouth. I just speak gibberish sometimes. It lasts a few minutes, then i’m fine. Today feels like it’s going to be … More Painful Day
The past year has been very difficult. I currently live with my Dad, as it’s easiest right now. Yesterday was his birthday and well, I decided to write him a letter expressing my thanks, love and gratitude to him. I want to share it with you all. Dear Dad: Happy Birthday!!!! I know … More Letter to My Dad
Hello Fellow readers! Today dawned a new day, bright, sunny, crisp day! I knew upon waking it would be one of my “jittery, and difficult” days. It’s been a busy few days, so I knew it would happen, so I set today aside to rest. Saturday was an Easter Egg Hunt with my Son; Sunday, … More A Jittery Day
Hello! Welcome to my blog! I have decided to blog my trials, tribulations and journey in dealing with this my everyday life. For starters, Let’s answer: What is Dysautonomia: Dysautonomia is a medical term utilized for a group of complex conditions that are caused by a malfunction of the autonomic … More Welcome