Down Days

I have had a few good days then a lot of bad days recently. Yesterday I spent pretty much in bed or on the couch. I just had no energy, and the pain was hell. I saw the Rheumatologist on Wednesday, she is now checking for Sjogren’s Syndrome. Joyous..Another possibility to add to the list. … More Down Days

Painful Day

Today I woke up and was in tremendous pain in my hands and legs.. I had problems speaking. Which is a new problem. It’s as if there is a disconnect between my brain and mouth. I just speak gibberish sometimes. It lasts a few minutes, then i’m fine. Today feels like it’s going to be … More Painful Day

A Jittery Day

Hello Fellow readers! Today dawned a new day, bright, sunny, crisp day! I knew upon waking it would be one of my “jittery, and difficult” days.  It’s been a busy few days, so I knew it would happen, so I set today aside to rest. Saturday was an Easter Egg Hunt with my Son; Sunday, … More A Jittery Day


Hello! Welcome to my blog! I have decided to blog my  trials, tribulations and journey in dealing with this my everyday life. For starters, Let’s answer: What is Dysautonomia:           Dysautonomia is a medical term utilized for a group of complex conditions that are caused by a malfunction of the autonomic … More Welcome