Welcome

iWelcome1

Hello! Welcome to my blog! I have decided to blog my  trials, tribulations and journey in dealing with this my everyday life.

For starters, Let’s answer:

What is Dysautonomia:

         

Dysautonomia is a medical term utilized for a group of complex conditions that are caused by a malfunction of the autonomic nervous system (ANS). The ANS regulates all of the unconscious functions of the body, including the cardiovascular system, gastrointestinal system, metabolic system, and endocrine system. A malfunction of the ANS can cause debilitating symptoms and may pose significant challenges for effective medical treatment. Orthostatic intolerance (the inability to remain upright) is a hallmark of the various forms of dysautonomia. Dysautonomia conditions can range from mild to debilitating and, on rare occasions, can be life threatening. Each dysautonomia case is unique and treatment must be individualized and may include pharmacological and non-pharmacological methods. Patients should be evaluated by a physician who is well-versed in the recent treatment modalities.

The symptoms of dysautonomia conditions are usually “invisible” to the untrained eye. The afflicted child may visually appear to be as healthy as those around him. The manifestations are occurring internally, and although the symptoms are verified medically they are often not visible on the outside. Symptoms can be unpredictable, may come and go, appear in any combination, and may vary in severity. Often patients will become more symptomatic after a stressor or a physical activity. Patients may find themselves involuntarily limiting their life-style activities in order to compensate for the conditions.

Dysautonomia conditions are widely unknown to society at large. As a result, most people do not realize the impact such conditions have on those afflicted and their families. Children who have dysautonomia struggle with some of the most basic functions that healthy people take for granted, beginning with getting out of bed in the morning. Each day and each moment brings new and unexpected obstacles. Yet, despite the betrayal of an uncooperative body, these young individuals face life with profound courage and incredible strength.

Many that deal with this suffer in silence. We can be silent no longer. I’m 27 years years old and this has affected my life so deeply, so much that I’ve had to learn to do simple tasks differently, to make it easier for myself. 

I will share my struggles with the world, in hopes of raising awareness for this. In hopes that more will see that those who suffer in silence, need a helping hand as well. We are strong, because we don’t want to shoulder the pain with anyone else. We take it on ourselves.

Join me, on this journey, as I battle this disease. As I refuse to let it beat me.

One thought on “Welcome

  1. Stephanie

    Wonderfully written my Dysautonomia/POTSy friend!!! So very proud of you in helping speead awareness hon;) XXX
    Steph

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